Intimacy of Women With Cystic Fibrosis

  • STATUS
    Recruiting
  • participants needed
    200
  • sponsor
    Hospices Civils de Lyon
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Updated on 16 February 2024
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fibrosis
cystic fibrosis

Summary

The intimate life of patients with cystic fibrosis has not been the subject of specific research, it is even left behind in favor of respiratory, digestive or endocrinological dysfunctions endangering these patients. After 16 years of practice, it is significant that this subject is problematic, painful but difficult to tackle; No doubt just as much on the side of caregivers: this question has never found its way into team exchanges, it seems to be evaded doubtless difficult or too intimate to welcome. These disorders arise from the effects of the disease on the health of the mucous epithelial tissues also located in the genital area. These difficulties are more closely approached by the difficulties of procreation; PMA allows them to get around them, nevertheless making it possible to be a parent, with the residual frustration of a satisfactory sex life: a deaf "addition", adding to many care constraints.

It is therefore in terms of sexual health and quality of sexual life that it is desirable to shed light on this aspect of cystic fibrosis in women.

Bibliographic research confirms this approach: this subject is not explored, the rare publications concern the vulnerability of the cervix or the difficulty on both sides of tackling this subject.

Details
Condition Cystic Fibrosis, Cystic Fibrosis
Age 18years - 100years
Treatment Intimate quality of life questionnaire
Clinical Study IdentifierNCT04225962
SponsorHospices Civils de Lyon
Last Modified on16 February 2024

Eligibility

 Yes No Not Sure

Inclusion Criteria

Major women with cystic fibrosis
Tracked in the various CRCMs in France
Having or having had sexual intercourse
Having previously been informed of the aims and confidentiality of this research and not having opposed their participation

Exclusion Criteria

Major women with cystic fibrosis whose state of health (acute episode of their disease or worsening phase) does not lend itself to such a collection
Adult women with cystic fibrosis who are unable to receive the information and make a non-objection
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