Rutgers University Study of the Genetics of Kidney Disease (rugcc-kd)

  • STATUS
    Recruiting
  • End date
    Oct 31, 2027
  • participants needed
    50000
  • sponsor
    Rutgers, The State University of New Jersey
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Updated on 4 November 2025
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Accepts healthy volunteers

Summary

The goal of this observational study is to learn more about how genes impact the risk of kidney disease. Anyone 18 or older living in the US is eligible, and a diagnosis of kidney disease is NOT required. Study participation is online, and it takes about 20 minutes to complete health surveys and request a saliva collection kit sent through US mail. In return, study participants may opt to receive information about their genetic ancestry at no cost.

Description

This is an online research study to learn more about how genes affect the risk of kidney disease. This is an online research study to learn more about how genes affect the risk of kidney disease. No office visit is required and in return, participants may receive information about their genetic ancestry for free. One in seven individuals in the United States today has chronic kidney disease (CDC 2023). The heritability -a measure of genetic, as opposed to environmental, contribution to a disease- of kidney function such as the estimated glomerular filtration rate (eGFR) has been estimated at 38%This study will increase our understanding of the genetic basis of kidney disease, which is a crucial step in drug development to improve current treatment options. The study investigators seek a diverse population because diversity among participants maximizes the usefulness of the data. Participants will use our online study portal to answer questions about their health and provide their DNA via a saliva sample using a pre-paid mailer. Participation takes approximately 20 minutes. Participants will be invited to share data from their electronic health records, but this is not required for study participation. The study investigators keep participants engaged with short monthly newsletters.

Details
Condition Kidney Disease, Kidney Disease, Chronic, Kidney Disease, End-Stage, Kidney Diseases, Kidney Diseases, Chronic, Kidney Diseases,Cystic
Age 18years or above
Clinical Study IdentifierNCT07217535
SponsorRutgers, The State University of New Jersey
Last Modified on4 November 2025

Eligibility

 Yes No Not Sure

Inclusion Criteria

age 18 years or older
currently living in the United States
able to understand and follow written instructions in English
have access to the internet and a computer, laptop, tablet or smart phone
willing to provide written informed consent for participation
willing to provide DNA via a saliva sample using a collection kit mailed to the study participant's home
willing to complete a survey with questions about health related to the study of kidney disease

Exclusion Criteria

Not able to meet or fulfill any of the inclusion criter
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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

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If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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